CLIMB are a national organisation working on behalf of children,
young people, adults and families affected by
metabolic disease.
Their purpose is:
- to provide Metabolic Disease specific information,advice and support to children, young people, adults, families and professionals in the United Kingdom.
- to fund educational and primary research programmes and investigate treatments and medical services.
With the help of Charlie’s money, CLIMB have published an MCADD website:
... and are holding an annual MCADD conference, the first one being held in October this year. They plan on targeting those newly diagnosed as it can prove very difficult for families.
The conference will be attended by families, nurses, researchers, professors and Doctors from across the world who will share their MCADD knowledge, experiences and research. We have been asked to be the first family to speak at the conference – how amazing!
Charlie’s tiny life is having such an inspirational influence. CLIMB are also using Charlie’s fund to improve life for families living with MCADD by changing the main protocols and guidelines and translating them into the major European languages so that families can download copies to take with them on holiday.
